Scientists crack mystery of how #MS gene spread https://www.bbc.co.uk/news/health-67917294 #news
#MS #EBV #Research #Epstein-BarrVirus
Epstein-Barr virus: a hot topic at the ECTRIMS research conference
https://www.mssociety.org.uk/research/latest-research/latest-research-news-and-blogs/epstein-barr-virus-hot-topic-ectrims-research-conference
Well, I know I slept well last night but I just fell asleep at my laptop for a couple of minutes. #MS fatigue is real. π
'Major moment in MS research' as new Octopus trial starts https://www.bbc.co.uk/news/health-65135637
My friend Gregg is taking part in the trial. I really hope it helps him, possibly one day can help me and definitely can help everyone with MS.
Celebrities who have bravely spoken about #MS: Christina Applegate, Selma Blair and more https://www.hellomagazine.com/healthandbeauty/health-and-fitness/20221201158560/celebrities-multiple-sclerosis-christina-applegate-selma-blair-more/
#MS Great post from Dr G about how EBV causes MS. https://gavingiovannoni.substack.com/p/more-evidence-that-ebv-causes-ms#details
#MS How do many people with MS feel in hot weather (this is all true for me). So yes today has been very bad, yes I have numbness, yes I can't move my feet or anything else normally. It will get better as it cools.
Posture and #MS https://mstrust.org.uk/a-z/understanding-and-improving-your-posture
(some of these may help non-MS sufferers too)
Apologies - this is technical. #MS
From Gavin Giovannoni, aka Prof G - twitter.@GavinGiovannoni (if you have MS and are on Twitter follow him!)
Who said #SmoulderingMS was not modifiable This study shows that chronic MS lesion activity in pwSPMS is strongly associated with disability and is impacted by natalizumab therapy. I can't tell you how important this study is for the field. Please read => https://buff.ly/3xVrazg
(on a personal note this is the drug I have once per month in London)
I've been posting these to my Twitter, Instagram and Facebook, but as it is the last day of the special week I'll post this here:
When you ask me how I am my fine/ok is not the same as your fine/ok - we use different scales. I get brain fog, forget words, get pain in places, and have TN and OAB.
Use the help you can -
It was like the Mary Celeste at my physio today - I was the only person in the entire gym apart from my physio. While it was nice to have her undivided attention for the full hour, she certainly made me work hard and pointed out in great detail the corrections I need to make to my posture. Apparently, my left side is weak, my left arm needs extra work with the wrist weights as the muscles are becoming tight and I need to adjust my seating position etc as I am listing to the right. *sigh* #MS
Is a virus we all have causing multiple sclerosis? https://www.bbc.co.uk/news/health-61042598 #MS
I just had the letter reporting the results from my latest MRI - no change from the previous one. So my DMD is working. #MS
#MS I was loaded into this contraption for some of my physio today - so very weird - and the harness is like wearing an old victorian corset (I imagine) - LiteGait for Adults http://www.litegait.com/product/lg-500
Interesting couple of posts about #MS that I saw on the birdsite. Something to watch and see what happens.
book reviewer blogger #MS
Blogs post to @Mandypar on Twitter/X
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Protreon