Having a really bad flare today and you folks have kept me cheerful and amused, so thank you all.
Whar be me #ChronicPain people?
🥄🥄🥄🥄🥄
I recommend that people who will be uncomfortable filter the hashtag (#)ChronicPain because I will talk about it.
It defines me now.
Ain't no smiley face going on with it.
No rah-rah.
I will have very bad days and reach out to others who get it.
So filters will never upset me.
My MIL called tonight and based on my voice was concerned.
I told her about GreatGrandmomInBed.
My grandfather's mom, who lived in our house (multi-generational houses FTW) who had RA.
And my cousins would get dressed up to visit GreatGrandmomInBed.
I noticed the first nodules under my skin in my 20s and ignored them.
I have a feeling RA is underdiagnosed.
#ChronicPain
#RA
Hiya!!!
@Shelter Not one, but guard your spoons!
I have 2 kids and 2 dogs. 😔
@Shelter Are the kids old enough to take care of the dogs?
It's complicated.
Technically yes.
I'm not comfortable discussing everything yet.
@Shelter Sorry. Didn’t mean to pry. Save your spoons. 🤗
No worries!
@Shelter as someone who was caregiver for a mother with Alzheimer’s & has a wife with lupus, I can see where this is a dilemma and hope you can find a solution soon. Maybe 16 can find a way to help you’re comfortable with.
@OrangeChuck
I appreciate that, but I can shower tomorrow.
I can clean myself today while essentially staying clothed.
I am not putting any of this on a 16yo.
@Shelter I wish I could help aside from hearing you and will listen and empathize. 💐. Please lean on us
Hearing is PERFECT.
@Shelter you got me as a follow. Disability issues, I’m always on board. I should see about putting ADHD in my profile too.
@Shelter uh and much more relevant, I’m deaf. Lol. I forgot about that.
@MelaKatie Wait til you see a rant about captions from me.
I'm not deaf, but I do have auditory processing disorder.
@Shelter chronic migraines here.
@jm__rives
Chronic migraine and chronic cluster headaches here.
I've got you.
@Shelter I’m right there with you. I feel your pain. ❤️
@FruitKace love you bunches.
@Shelter love you back.
@Shelter Disability problems I'm also experiencing. I'm hoping #NEISvoid comes here but who knows. #chronicpain #chronicillness
Hugs from me.
I mentioned that I physically can't get showered tonight because I can't get my sweatshirt off.
16 asked if they should help.
I said Oh lord no, thank you. I'll get one tomorrow.
Be kind to your disabled friends.
Gotta say that being 51 and unable to lift a shirt over my head was not on my itinerary for my life.
#ChronicPain
#RA