Nephrologist
Gastrologist
Pulmonologist
Cardiologist
Oncologist
Endocrinologist
Thoracic Surgeon
Primary MD
Too many damn doctors, from only having to manage blood pressure and cholesterol to this.
#FUCKCANCER TO MARS AND BACK
@CherNohio
So sorry Cher. It's so overwhelming at times. And seemingly endless.
Hope he is doing okay tonight. And I really hope you are too. 💗
@CherNohio Go, get
'em, Tiger. 💜
@CinnamonGirlE
And I'm not ok. I'm fucking pissed. My heart is breaking in two to see him this way and have him feel so badly. He didn't deserve to have this happen to him. He was serving his country for God sake and this is the thanks he gets? Screw it all!
@CherNohio
I know. The anger overtakes us too. And I tried so hard to not convey it to him. It's like being in the middle of a no win.
You don't have to be okay this very minute. He absolutely didn't deserve it. I understand that too. It's infuriating. It makes no sense. And it hurts like hell.
@CinnamonGirlE
Thank you for listening to my ranting. I just had to get it out.
@CherNohio
Absolutely anytime. You can always DM me too.
@CherNohio oh Cher…I am so sorry. Wish there was something I could do. I’m glad he’s got you on his side. 💛
@CinnamonGirlE @Novels56
Thanks....I feel better just screaming it out. Have had it tucked away for some time. I'm letting the infused brownie take over now lol
@CherNohio @Novels56
That a girl. Scream it out. Breath, eat the brownie. Sleep. Live to love and fight another day my friend.
@CinnamonGirlE @Novels56
It's how I've been all my life, a fighter. I've looked things square in the face and hit it straight on every single time. The wrath has been felt for a very long time when those lines of demarcation are drawn. I've challenged before, I'll do it again. Because I'm unstoppable when what I need to do.
@CherNohio @Novels56
I admire that tremendously. It speaks of something you have faced in your life you chosen to stand up to, not lie down. I recognize it as I too have faced a lot of hard things. "Fall down seven times, get up eight."
@CherNohio I’m so sorry this is happening. Vent all you need, you have an entire community here to support you. You are a warrior. 🫂❤️
@misslovelymess 💜 Double armor it seems some days. But yeah, I am!
@CinnamonGirlE @Novels56
@CherNohio
You have every right to be pissed, and then some. Got to where you are until I met that 'one' clinician who recognized my husband to be more than the sum of his medical conditions and wild array therapeutics. Not trying to dismiss your situation as mine, but the frustrations are recognizable and fucking ridiculous. You have all my heart right now.
@CherNohio
It all does become endless. And sometimes you have to stand up. I remember an instance of having to threaten to leave AMA from the hospital in the dead of winter, where a local hospitalist decided to play god and start changing all my husbands meds/etc without consulting his oncologist. Nope. Do what you have to. Sometimes we get lost in the system.
And seek what solace you can, because it's damn hard work being an advocate or caregiver. 💜💗
I am so sorry, dear. You and your husband are in my thoughts.
@CherNohio I am so sorry 😔 I hope you find whom you're looking for ❤️🩹
@CherNohio exactly - that is your job.
So sorry for you both going through this.
They have meetings as a group to dicuss his case as a team and collegues get one of them to give you the latest. And if they aren't ask why not yet.
You will find one as an ally amongst all those even if she isn't.
A dr friend makes me go in with my parents. Specifically because I won't be polite when needed. The good ones appreciate it.💜
@damselfly59 Thank you for that affirmation. Much appreciated.
@CinnamonGirlE
@CherNohio Much love too. All of us are in your corner. @CinnamonGirlE
@damselfly59 💜 😘 I've felt your presence recently beside me as I know how hard you fought too. Thank you for that spirit received. 💜
@CinnamonGirlE
@CherNohio You are going to have a better outcome. I feel it. Hoping this is a storm of too much something. Know the first months were hardest to adjust to the assault. Moved between types and brands of anti nausea meds and keeping hydrated - once a day for a bit till the storm settled.
I don't want to sound like advice all the time. But sometimes just hoping something sticks.
@CinnamonGirlE
@damselfly59 Hope, the ultimate importance of that word. It's so damn powerful in that moment especially. Thank you
@CherNohio Cher, I've been an advocate for my father in law.. my brother in law.. it's almost, dare I say it.. seems like I'm practicing.. but please, know: You are where you are for a reason. Again, I'll repeat myself:
Go get 'em, Tiger and bite hard. and I love you. 💜
@MrsE0113
You and Me..MrsE. We are on the same page. Love you too friend 💜
♥️ it really is. :|
I’m sorry you are having to reach such insane limits of strength, @CherNohio @CinnamonGirlE
@CinnamonGirlE
It's unbearable today. This man has barely been a functional human being since he was discharged from the hospital on the 13th. Tomorrow this changes.
I REFUSE to administer SAMSCA one more day. I have my arsenal ready and that doctor will hear me out. I am his first line of defense and I'm here to tell ya, it's gonna get ugly if something isn't done. I have alternatives in mind to discuss and if she's not willing to listen, I'll find another Dr. This shit is inhumane.