Part of the Spoonie Life is getting to explain to befuddled doctors that, no, that medicine will not actually work. Explaining that I can't take the standard array of pain meds to new drs is always super, super fun. I guess they don't cover disabilities in med school.
@LianaBrooks Ah yes. I am familiar.
First, explaining my decades of medical history, then on top of that, having to convince each new doctor that no, I am not making things up or ignorant of my health conditions. I really _can't_ take certain meds, or already know what they do to me.
"But this medicine is well-tolerated. It only causes a second evil head to grow on less than 1% of people!"
Yes. I am _in_ that 1%!
@AskTheDevil The confusion is that I'm a chronic pain patient. I have dislocated joints a couple times a day. My body is a wreck and should be buried.
... and pain killers don't work. Opiods don't work. We have yet to find a way to treat my pain and we found this out during a c-section because I thought otc pain killers were placebos. People took the bitter tictac and said they felt better, but I never did. So I figured they were better at faking it.
@AskTheDevil This also means future surgeries are really, *really* not recommended. Because, yes, drilling a hole in my kneecap and looping a muscle through it would keep it from dislocating, but I'd need the surgery every five years and I'd be doing it without meds.
It's not happening.
@LianaBrooks I keep thinking about it, and I think it would drive me up the wall having one of my leg muscles going through my kneecap. I think it would take longer to get used to than the surgery would last.
@AskTheDevil It also wouldn't fix my kneecaps. They move of their own accord. Although wearing a slight heel (2inch or so) usually prevents hyperextensions and dislocations.
@LianaBrooks Argh! I don't blame, you and I can relate.
One of the obstactles I've encountered, too, is when I try to explain that many pain meds do nothing for me, they'll think I'm trying to get _more_ of them. They think it's "drug-seeking" behavior, and try to give me the lecture, and I have to explain, "No, no, I'm not asking for more. I'm saying they don't work!"