@voltronic good and bad. There's a lot of medications that do better when we know there's a genetic component involved and who's at risk and treat earlier. Family history is no joke. Could be trying to see if some diseases are truly passed on and in what genetic pattern. There's a couple disorders in my family they are actively trying to figure out. Or for chronic pain people who aren't believed, this could be big.
But I understand fears of info getting out but we have to start somewhere.
@insomniacviolin
I'm not disputing any of that, but DNA data can often wind up places people don't expect. Law enforcement databases, for example.
The mistake was giving a company (-anyone-) your genetic data. Once you give it willingly to a third party, you’re screwed. Legally.
Well, and the pharmaceutical companies are profiting -wildly- off of their patented medications, charging whatever they want, after using our genetic data virtually for free? No thanks.
@voltronic that's seems like a big ol yikes.
@voltronic I bet they could just pay the hacker who breached all that data a couple of weeks ago a quarter of that.
@th3j35t3r
This is exactly why I made it an alert post. People think that their data is only being used for the purpose they think that is. That's almost never true.
Oh that sucks.
How is this even legal?
Shouldn't private health information be legally kept private?
@amarand @voltronic
They'll claim it's anonymous...
😡🤬😡
But it’s absolutely not. It’s DNA data.
@amarand @voltronic
Oh... But whose is whose with no associative info...
Don't get me wrong I agree with you...
“… anonymized DNA data from the approximately 80% of gene-testing customers who have agreed to share their information for research…”
So only if you agreed to share your information for research.
@amarand
You just know that's one of the boxes somebody ticked, or worse, the classic 'dark pattern' of failing to opt out when the default is sharing their data.
Yup, and now your data is “out there” forever. No way to pull it back in.
@voltronic
Thanks! I hate it.