I've not found anything that works. Thankfully, I don't get them often. "Just" migraines.
I'm on Ajovy for migraines now, and that's been amazing so far. I'll need about a year on it before I know if it's preventing the cluster headaches.
@Agatha glad to hear that for you. What's the difference in your symptoms between the two?
When I get a cluster there's no aura. No warning. Just BAM - 100% intensity practically immediately. First time it happened I thought I was having an aneurysm or stroke (my eyelid will droop). I was asleep when it hit the first time. It tends to stop nearly as quickly, too. And they don't last as long as my migraines (thankfully).
I'm exhausted afterwards. Not normal tired. Like I've been in a car wreck.
@Agatha sorry... π The medicine you mentioned for migraines, is it anti-seizure? Does it cloud your mind at all?
@hallmarc
Oh that's terrible! Yes, I feel extremely fortunate. I hope it continues to work (I have a history of meds just not working suddenly).