Anyone have experience with hospice care? Chemo/immunotherapy aren’t helping mom this time. Her cancer has spread to her liver, the bones of her pelvis, and lymph system. The oncologist recommended hospice care. I would welcome any wisdom/information you guys have to offer.
@TRantosaurus
I’m so terribly sorry. My heart breaks for you. 😪 A hospice provider manages palliative care. I was involved with that given to my mom who also had cancer. You’ll receive an initial visit from a team leader who will assess the level of initial care. A nurse will be assigned who will routinely call and visit your mom. She will work with the hospice doc to determine which comfort drugs are best for her. Medicare paid for mom’s. 1/??
@TRantosaurus
Medicare also paid for any equipment mom needed, walker, wheelchair, oxygen as well as any prescriptions needed to manage side effects from the comfort drugs. As the need progresses, the team will be in constant contact with your mom and those persons assigned to also be involved. The nurse visits increased depending on need. At the very least calls are routinely made. Contact will also be made with the hospice social worker and spiritual counselor 2/??
@CherNohio Great info., thank you. It’s helps a little to feel like I’m getting a handle on things.
@TRantosaurus I understand so well. Consider keeping notes in a journal. It kept me sane through the process. It’s impossible to remember every detail when this is such an emotional journey for all. I attended every nurse visit, listened in on every phone call and write every detail down. It was a reference for those times my heart was breaking and I couldn’t remember the details.