Okay this thread is going to be pinned.

I’m intersex. Androgen insensitive. My chromosomes are XY despite looking phenotypically female. When I was born I didn’t have all the necessary mapping like a vaginal canal or cervix. I had a partial uterus, an ovary and a gonad not connected to anything. Because of this, the doctor suggested to my parents to get me “fixed” right away. There was 0 reasons to do this. It was not negatively affecting me. I could pee just fine.

At 3 years old my parents took me to have my condition “corrected”. The doctor who did it wasn’t a specialist or a urologist even. He made a vaginal canal (keep in mind I was 3 years old) and moved my urethra into it. Apparently on the inside he also moved around my kidneys and bladder. I had frequent bladder infections growing up and no one knew why.

After being with a long term sexual partner at 25 who told me things weren’t organized properly I asked my mom about it. Of course the only way I could have known was if someone has seen it she went off on me so I didn’t get any answers. I tried again later and was shamed for it so I started trying to seek out a doctor who could help. Every time I was shot down by insurance because it was considered cosmetic despite it seriously affecting my health.

After a decade I decided to get another surgery, a hysterectomy, since it didn’t work anyway and really wasn’t interested in fixing it’s behavior. I asked the obgyn if I could also get my urethra re arranged and she said sure she just needed a urologist present to help. So I scheduled that. It was just a few days ago while I am typing this up. April 27, 2022 is the day it was done.

Surgery started at 9am. I came to at 5pm. So a 2 hour max procedure ended up going for 8 hours because of how misplaced my entire urinary tract was. My tubes to my kidneys were twisted and my urethra was twisted around one of them so it took quite a while to untangle it all and also move it to the correct positions in my body. I currently have kidney stents to help everything heal.

My intestines were exposed for quite a while during the process so I was very bloated up until today.

The take away from all of this is it could have been avoided entirely if doctors would just leave intersex kids alone if their anatomy isn’t causing any medical issues. It can be changed later if they decide to.

Follow

@Qbae Wow.. I am just staggered by your bravery and determination. You are a light in the darkness for others who are living with similar issues. I appreciate your story and hope you let us know how you are progressing. I send you warm, healing prayers for positive future wellness. ❤️😘

@suedanim I posted this back in April and pinned it then. I’m doing great now. All healed! Thank you tho! 💕

Sign in to participate in the conversation

CounterSocial is the first Social Network Platform to take a zero-tolerance stance to hostile nations, bot accounts and trolls who are weaponizing OUR social media platforms and freedoms to engage in influence operations against us. And we're here to counter it.