@homebird Yes - "It's complicated" is never a good answer and most of the time no one really wants to know the truth lol 🤗 ❤️

@Mandypar Yep, I always feel a cross between, "How long have you got?" and "You really don't want me to bring your day down with my answer!"

@Zailrand I hope she can stop that pattern of relapsing as often the damage does not completely reverse. I also hope she is on a good Disease Modifying Drug (DMD) to help stop them. I rarely have relapses now, but I used to get them a lot. I was fine for years, not so much now sadly. Have a great day! 🤗

@Mandypar Thank you. She has a fantastic consultant and drug therapy under constant review. She's heard she's been accepted for stem cell treatment which is a hard path (6mths isolation!) so hoping that will help her. She was on clinical trial for Campath (Lamtrada) and I think had 3 rounds on the trial and 3 since - it was great for her but I don't think the last one was as efficacious as the earlier ones, hence the rec for stem cells. She's 46 btw. Hope you have a great day too x

@Zailrand I think that the stem cell stuff is a good thing to try and so yes it is hard but it could well stop it. I take Tysabri and have done for about 12 years (and I am JC virus + too) but the risk is very well managed and after a certain time the risk reduces (which is weird).

@Mandypar Just had to Google JC virus. That sounds nasty, clearly just what you need on top of MS :(

I'm really hoping that the stem cell stuff has a +ve outcome. Apparently she's an ideal candidate so fingers crossed...

@Zailrand Most kids have had JC virus and have not realised it (as was the case for me) - the problem is it increases the risk level for me for my DMD. Great news that she is an ideal candidate - I know I'm not.

@chromogirl today is a good day thanks to my oxygen therapy yesterday (so I get an energy boost). I hope you have a great day!