Me at the end of a Spartan Beast race (21 km + 30 obstacles) not sure if I had enough energy left to jump the firepit at the end! 😆

2) I'd definitely recommended signing up for Enroll-HD if you are in a HD family and would like to be considered for future studies.

1) Today I was in London at the Royal Hospital for Integrated Medicine, Great Ormond Street, London. I had my regular, annual, Enroll-HD clinical research appointment. In addition to being a long-running Huntington’s Disease observational study, Enroll-HD is also a handy resource for HD researchers to help them identify HD patients that might be suitable for any HD research studies and/or clinical trials that they might be designing. You can find more info here: https://www.enroll-hd.org/

Part 2) I still feel in great shape, despite my participation in the trial having finished in July 2021. There is a new trial underway with tominersen called GENERATION-HD2. which you can read about in the link below to the HDBuzz article above.

Part 1) I took part in the Roche GENERATION-HD1 clinical trial evaluating the efficacy of the huntingtin-lowering drug, tominersen, for patients with Huntingtons Disease. After the trial had concluded, I found out that I was on the active drug (rather than the placebo). I'm not surprised as I really felt that my HD symptoms have improved considerably while on (and since) the trial.

en.hdbuzz.net/354

Here is a link to all my social media contact information:

https://linktr.ee/mattwardfromage

I'm back on social media after a couple of years break. Did I miss anything? 🤔 It's going to take a while for me to reestablish all of my connections.