I've got myself an early Xmas present to cheer myself up. It's a voice controlled bean to cup Siemens EQ900 Plus coffee machine 😀 I can use my voice to turn it on and tell it to make me an espresso ☕

That's my ongoing head/neck piece looking awesome! Many thanks @chitayart at @hiddensorrowstudio ❤️

I've just finished reading The Expanse series of books by James S A Corey. It's a great read and I definitely recommend it, especially if you like sci-fi with a little horror. The TV show is fantastic too.

I'm thinking of reading the Hyperion Cantos series by Dan Simmons next. I've also heard good things about The Remembrance of Earth's Past series by Cixin Liu (first book is The Three-Body Problem). Has anyone got any other sci-fi/horror recommendations?

Yep - that's me 🙂

I'm sure I'll find someone like that one day.

Yes indeed 💪

Very true! 🙂

I've been struggling a lot for the past 6 months so I've taken some time out from my masters (MSc in Mental Health Science). I'm studying at the Open University here in the UK. I told them about HD and they have been very understanding and flexible.

Life is hard enough when you've got a terminally expanding hole in your brain thanks to Huntington's Disease. It was invaluable having support from my family (before I was unexpectedly divorced). I've been alone and living on my own for the past six years which has made my life immeasurably more challenging. Facing the darkness each day is difficult enough with HD even when you've got a good support network.

Spent all morning battling my way out of bed again. Same demon as always: HD. HD said: I'll kill you. I said: Not today 💪

Here is a handy summary of Huntington's Disease for #HDawarenessmonth

We're all in this together #research #cures #cureHD #HDawarenessmonth #HuntingtonsDisease

We're all in this together #research #cures #cureHD #HDawarenessmonth #HuntingtonsDisease

Good morning world and fuck off Huntington's Disease #FuckYouHD

Just blowing the cobwebs out and trying to stay alive until they find a cure for HD 💪

I had another tattoo session today. We've finished my chest piece! The chest piece artwork highlights my ongoing battle against my mental health demons. We've also made a start on my full neck piece 🙂 The work has been done by amazing artist Wilfred Chitay (Instagram: @chitayart) at Hidden Sorrow Tattoo Studio (Instagram: @hiddensorrowstudio).

Getting tattooed reminds me that something beautiful can come from pain. It makes me hopeful that one day I shall be happy again. I had a tattoo session yesterday continuing the work on my chest piece by artist Wilfred Chitay (Instagram: @chitayart) at Hidden Sorrow Tattoo Studio (Instagram: @hiddensorrowstudio).

I'm wearing invisible dental braces - can you tell? 🙂

This is a photo of myself and my late mum, Dawn, when we lived in New Jersey, USA. I'm about 2-3 years old and Dawn is about 22-23. It was around this time that my mum's dad passed away from suspected Huntington's Disease. This was the first time that my mum and dad had heard about HD so they visited their local Huntington's Disease Society of America (HDSA) to find out more about the condition.

Me at the end of a Spartan Beast race (21 km + 30 obstacles) not sure if I had enough energy left to jump the firepit at the end! 😆