A little over a week ago she fell, twice in 2 days. We didn't recognize it at the time, but it was probably terminal agitation. She wouldn't stop moving.

My mother died this past weekend.

She had Parkinson's dementia. She was doing mostly OK a year ago last May. We had to move her to memory care in September because she started wandering off.

Happy Fuck England Day you guyyysss!!!

I find it interesting how similar the signs of chronic burnout are to the symptoms of major depression.

Funny how that works.

Yeah. So. I got a lot going on.

Parkinson's sucks. Lewy body dementia sucks. It all sucks. It fucking sucks to the core.

That is all.

Dad is truckin' along, doing what he can to manage it. I don't know how the hell he's holding up, seeing his wife of 57 years decaying in front of his eyes. He's a pretty calm, Stoic kind of guy so he doesn't emote much, but I know him well enough to know his feelings run deep.

There really is a massive care crisis in the US. It's inexcusable. & we're not the only family living with the horrors of trying to deal with all this bullshit.

We have no idea how long she'll be in limbo in the psych unit, or where she will go next. Adult homes are overflowing, memory care won't take her, dad can't afford to have a 24/7 carer... fuck, he's going to be 80 this year, *he* certainly can't take care of her.

Dying Boomers are overwhelming the health care system here, along with staffing issues caused by a whole bunch of different factors (including post-pandemic issues, fewer providers due to burnout, & limits on how many new MDs can be trained each year).

& I'm in the US, so care for folks like my mom just... isn't there.

I mean, there are something like 1350 geropsychiatrists *in the entire nation*. There's one program locally & it's full. The waiting list is years for care.

She's been a shell of a person ever since she was a child. & now she's barely even that. She keeps lashing out & the staff keep having to restrain her so she doesn't hurt herself or anyone else. She spends half the time knocked out on Ativan & the other half of the time pacing & wandering & completely confused.

I get why: she was raised by a beautiful, charming, incredibly cruel mother - who passed the abusive legacy down from her own mother. This shit goes back to my great-grandmother, maybe even before that. Mom wasn't wanted from even before she was born, & it hollowed her out by the age of 6.

Saddest of all is that I've never had a good, healthy, honest relationship with my mother.

She spent most of my life drunk, inflicting her demons on the rest of her family. Some of the shit she's pulled over the years is so fucked up it's inexcusable. She is *not* a good person.

Mostly I'm sad, when I feel about it. Bone-deep, sorrow is my blood, kind of sad.

Nobody should die like this. Brain diseases are shit.

Easier to look at my own spelling errors than at the haggard, dying woman that is my biological mother, & the reality of her situation. Mostly I stay detached from it. It's fucking horrifying when I can't.

Huh. Condition. Apparently I'm not spelling perfectly these days.

She's getting great care, at least; her providers and carers treat her with compassion & kindness, & seem as if they're up on the latest research & info re: her condision.

She was living at a memory care place but started attacking people, so had to leave.

Right now she's in a severe sundowning phase, with every single symptom: anxiety, agitation, restlessness, pacing, aggression, the works. She's currently locked up in a psych unit with a 24/7 sitter while they desperately try to find her a bed at a geropsych unit.

I don't blame Williams for ending his own life in the least. This shit is horrible. It's like living a horror story that gets worse every day.

Mom has Parkinson's dementia. It's a form of Lewy body dementia, the same thing Robin Williams had (more or less). Her brain is literally clogging with proteins & dying, bit by bit.