Note: All holidays are important however I would like to make a separate toot simply because this holiday hits home for me as My youngest son has this.
It is International Epilepsy Day today.
I will always remember the very first time I found my son when he had his first grand mal seizure. I found him with his head stuck in the bathroom trash bucket because he fell forward into it and I had to pull it off him. my son is almost twice my size so not easy to move around.
Cont.
#Holidays
@TheNewsOwl I am so very sorry that your son is afflicted with this. I can't imagine what it must be like for any parent to witness their children go through a grand mal seizure. Glad to hear that medications have helped! Prayers for anyone going through this. ππ
@Spagesgallo1 Thank you dear Stephanie. What is sad about the issue is the stigma that comes with it. My son always had a hard time making friends because parents wouldn't allow him to come over to their house for fear that he may have a seizure. He wasn't allowed to learn how to swim in school when the other kids where because the school wasn't willing to have the nurse basically on stand by for the half hour to hour his swimming class was. Just things like that is very hard to see as a parent.
@TheNewsOwl oh my goodness! Like the seizures haven't stolen enough from your son's life! Oh, I am truly so very sorry that your son was denied from partaking in so many activities in his youth. My heart is truly breaking. I really can't imagine how that must have been for you as a parent to see your son denied such simple pleasures. So much education about seizures really does need to be done! Awareness is key, in order to help destigmatize this condition.
@Spagesgallo1 β€οΈ Thank you again and yes. the thing is while it is frightening to see it really is not much different then any other thing accident you would handle. I mean you do not have to handle him to much. just make sure he is on his side and comfortable. If he has injured himself badly or is seizing tlong then simply call the ambulance. That would be for the parents that may be worried about him coming over. Also, many religious ppl used to think that seizures were a sign of posession
@TheNewsOwl Agreed! I believe that people fear what they don't understand. That is why there's such a stigma attached to someone who has seizures. Such simple, easy to follow protocols. If only one parent had been open to learning how to intervene..Yes, I know! I learned about that in a psychology course. I have no doubt that there are still religious people who still believe that. Ugh!
The second time was when I learned that it never gets any easier watching him have them. He had been walking on the sidewalk with some friends and collapsed face first and the ambulance came and took him to the hospital. when I got there he simply continually had seizure after seizure. It frightened me like nothing ever before.
Luckily today he has been seizure free(meds) for the most part with occasion of some maybe in his sleep-which is I guess minimizes falling accidents. β€οΈ