Hello! My name is Elly, I'm 31 years old and I was diagnosed with Fanconi Anemia at 9 years old. I was third in line in 2003 after Dr. John Wagner's non-radiation protocol. Along with my diagnosis came other challenges such as short stature (I'm petite standing at 4'8), hearing loss, born without thumbs, and kidney issues. ⬇️
I don't mean to pry. But is this Dr. John Wagner a nephrologist at Montefiore? Just curious because I used to work with a Dr. John Wagner at Long Island Jewish Medical Center outpatient dialysis unit. If he is one and the same, he's a brilliant doctor!
@Spagesgallo1 all good! He is actually at the University of Minnesota 😊
Oh, okay! I'm so happy that you have a doctor who uses the most cutting edge technology! 😊💛
@Spagesgallo1 I appreciate that! My health has taken me on a roller coaster my whole life, I'm just so thankful I have an amazing support system!
@EllyOnTheGo
I can't even begin to imagine. But you are definitely one tough warrior! Having an amazing support team makes all of the difference in outcomes! I'm so happy that you are cared for by a wonderful support system! 😊💜