Experts weigh medical advances in gene-editing with ethical dilemmas

#ResearchEthics #GeneEditing

https://www.npr.org/sections/health-shots/2023/03/06/1158705095/genome-summit-gene-editing-ethics-crspr

The State Of Black Participation In Clinical Trials

#ResearchEthics #ClinicalResearch #Diversity #Inclusion #Participation

https://www.clinicalleader.com/download/submit/42617c53-c3fc-4f03-b5f8-ca9821771114

Calculating Diversity in Clinical Research Studies

#ResearchEthics #Diversity #Inclusion #Participation

https://www.appliedclinicaltrialsonline.com/view/calculating-diversity-in-clinical-research-studies

China releases 'landmark' document on ethics reviews of life sciences, medical research involving humans

#ResearchEthics #China #NationalRegulation

https://www.globaltimes.cn/page/202303/1286452.shtml

Representation In Clinical Research: Clinician Insights Re Diversity And Inclusion

#ResearchEthics #ClinicalResearch #Diversity #Inclusion #Participation

https://www.clinicalleader.com/doc/representation-in-clinical-research-clinician-insights-re-diversity-and-inclusion-0001

Using wearable cameras to investigate health-related daily life experiences: A literature review of precautions and risks in empirical studies

#ResearchEthics #HealthResearch #WearableCameras

https://journals.sagepub.com/doi/10.1177/17470161211054021

Investigation spotlights rise of for-profit ethics boards in research

#ResearchEthics #GAO #IRB #ForProfit

https://www.washingtonpost.com/business/2023/02/16/irb-research-ethics-private-equity/

Underrepresentation & Overconsumption: Exploring The Gap In Global Clinical Trial Diversity

#ResearchEthics #ClinicalResearch #Diversity #Inclusion #Representation

https://www.clinicalleader.com/doc/underrepresentation-overconsumption-exploring-the-gap-in-global-clinical-trial-diversity-0001

Andrew Wakefield after 25 years: Paving the way for COVID-19 quacks and antivaxxers

#ResearchEthics #Wakefield #COVID #Misinformation

https://sciencebasedmedicine.org/andrew-wakefield-after-25-years-paving-the-way-for-covid-19-quacks-and-antivaxxers/

‘It’s perfect’: World’s first generative AI-designed COVID drug to start clinical trials
#ResearchEthics #AI #ClinicalResearch #COVID #COVIDTreatment

https://www.thestar.com/news/canada/2023/02/23/its-perfect-worlds-first-generative-ai-designed-covid-drug-to-start-clinical-trials.html

FDA to require diversity plan for clinical trials

#ResearchEthics #FDA #DiversityPlan

https://www.nature.com/articles/d41586-023-00469-4

Evaluating models of consent in changing health research environments

#ResearchEthics #InformedConsent

https://link.springer.com/article/10.1007/s11019-022-10074-3

Hope For Universal, Ready-Made CAR T Therapy For Multiple Myeloma

#ResearchEthics #ClinicalResearch #CART

https://www.forbes.com/sites/williamhaseltine/2023/02/23/hope-for-universal-ready-made-car-t-therapy-for-multiple-myeloma/

Patients acceptance and comprehension to written and verbal consent (PAC–VC)

#ResearchEthics #InformedConsent #Comprehension

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-023-00893-1

Understanding AI Research Ethics as a Collective Problem

#ResearchEthics #AI

https://goodmenproject.com/featured-content/understanding-ai-research-ethics-as-a-collective-problem/

The Ethics of Clinical Research: Managing Persistent Uncertainty

#ResearchEthics #Equipoise #Uncertainty

https://jamanetwork.com/journals/jama/fullarticle/2801829

Lack of diversity in clinical trials is leaving women and patients of color behind and harming the future of medicine

#ResearchEthics #ClinicalResearch #Diversity #Inclusion

https://theconversation-com.cdn.ampproject.org/c/s/theconversation.com/amp/lack-of-diversity-in-clinical-trials-is-leaving-women-and-patients-of-color-behind-and-harming-the-future-of-medicine-podcast-199487

https://theconversation-com.cdn.ampproject.org/c/s/theconversation.com/amp/lack-of-diversity-in-clinical-trials-is-leaving-women-and-patients-of-color-behind-and-harming-the-future-of-medicine-podcast-199487

Medical Mistrust and the Historic Role of Sickle Cell Testing in the African American Community

#ResearchEthics #Mistrust #SickleCell

https://blog.primr.org/medical-mistrust-and-the-historic-role-of-sickle-cell-testing-in-the-african-american-community/

Investigation spotlights rise of for-profit ethics boards in research

#ResearchEthics #PrivateIRB

https://www.washingtonpost.com/business/2023/02/16/irb-research-ethics-private-equity/

Key ethical issues encountered during COVID-19 research: a thematic analysis of perspectives from South African research ethics committees

#ResearchEthics #REB #IRB #REC #COVID19

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-023-00888-y